Fun time after all the surgeries

January 19-25, 2008 

https://www.facebook.com/RMHStanford?ref=br_rs 
Day 19: Saturday 19, 2008 

Last night Meadow slept on the same side as her surgery, which caused her left eye to swell, so we stayed close to the RMH just to be on the safe side.

Meadow at the RMH

I was awake at 8:30 A.M. I took a shower, shaved my legs, and cut my bangs.

I  went downstairs for breakfast, where I ate a waffle, and some Mandarin oranges, and drank a diet coke.

I talked with Brianna Hall, who is expecting a baby; her daughter Rachel just had her third surgery on her heart and she is in PICU. 

I also talked with Robert’s grandfather they are a Spanish-speaking family, from Arizona,

Roberts's grandfather is retired and a member of the Shiners.

Meadow and Lora were still in bed at 11:45 A.M.

That night for supper everyone pitched in and we made homemade spaghetti, a fresh salad, and toasted garlic bread. 

I was given the task of cutting up to three whole garlic, which I had never done before, and was told I was doing it wrong.

One of the women said, that you take a knife turn it on the flat side, and crush the garlic, and the peelings will fall off. 

Lora, Meadow, and I walked across the street to the Stanford Mall. 
http://www.simon.com/mall/stanford-shopping-center/stores

We walked through stores, and we stopped at Andronicus Market where we bought a lemon cheesecake and a couple of fruit custard tarts.  

At the Fruit market, we bought 5 pounds of oranges for 99 cents. 

We walked across the street and down Sand Hill Road to the park, where Lora played with Meadow.

We walked back to the RMH, where we ate supper and veered out for the rest of the day.

Day 20: Sunday, January 20, 2008 

On our trip to the San Francisco Zoo, we rode up from the South Bay area driving 280 north to the Westlake district, exited at Daly City, and turned left at John Daly Boulevard to Skyline Boulevard (Hwy 35) at the junction we turned left onto the Great Highway and turned right into the moon entrance.

On our way to the zoo, we stopped at the Pacifica Oceans in the town of Pacifica, where we saw a pier that extended for what seemed like miles into the ocean, with people on either side fishing.
http://www.cityofpacifica.org

It was a blustery bad, the sky was loaded with thousands of white puffy clouds filled with drops of rain. 

The wind whistled, as the ocean rolled wave after wave onto the sandy beach.

With the eye of my camera, I captured this awesome view.

We could not stay long along the ocean’s edge because Meadow could not tolerate the strong wind.

Town of Pacifica 

We stopped again at Thornton State Beach in Daily, where we walked on a sidewalk to the Pacific Ocean's edge.

 I took out my camera and took several pictures of the ocean and a sign that read:

“ IF IT IS SUMMER BRING A SWEATER. DAILY CITY SUMMERS ARE VIRTUALLY RAIN BUT DON’T EXPECT ANY SUNNY SKIES.”

Another sign in the same area said:

“THE GROUND BENEATH YOUR FEET HERE AT THOMAS BEACH IS NOT SOLID, AS IT SEEMS. THE GOUND ITSELF IS MADE UP OF SEMI-CONSOLIDATED SEDIMENTARY ROCK FROM HERE TO MUSSEL ROCK- IT DOESN'T HOLD TOGETHER WELL, WHICH MAKES THE COASTLINE VERY UNSTABLE.”
http://www.parks.ca.gov/?page_id=530

We drove about a mile up the coast to Funston National Park where I used a porta-potty, that was mounted on a slab of concrete.

The wind was blowing strong, around 35 miles per hour, as I approached the porta-potty, it was unlocked and I went inside. 

Many thoughts raced through my mind as I prepared to use the pot. 

I could just imagine myself being blown off the clifftop into the ocean, floating upside down inside the porta-potty in the middle of the Pacific Ocean.

I also thought about the time a man was eaten by a T-REX while using the porta-potty in the Jurassic Park Movie.

We walked along a sandy path into the park where people were walking their dogs, riding bicycles, and hanging gliding.

Funston National Park 

I walked as near as I could to the cliff edge, to get some close-up shots of the rolling waves, the greenish-blue Pacific Ocean, and the white puffy clouds.

The wind was blinding us with sand, as we walked backward, along with the sandy path back to our car.

We ate a late lunch at Burger King and arrived at the San Francisco Zoo around 2:30 P.M.

Disabled children get in free at the San Francisco Zoo, and the family gets to park free.

The cost for Lora and me was twenty-two dollars.

We entered the park used the restroom, changed Meadow’s diaper, and went to the gift shop where Lora bought a scarf to put around her neck, to protect her neck and ears from the bitter wind.

We walked to the African Region where we saw the long-necked, brown, and white Reticulated Griffins, Grant’s White Zebras with black stripes, and the black furry, Western Lowland Gorilla.

In the Primate Discovery Center, we saw several different types of monkeys including Baboons and a pair of chimpanzees.

At Koala Crossing we saw 100s of long-legged pink flamingos, and several varieties of birds, and the Kola cage was empty. 

Near the Cat Kingdom, we saw the North American River Otters, the California Sea Lions, and a Nile Hippopotamus, and Penguin Island was covered with miniature-wearing black and white tuxedos.

The Cat Kingdom that housed the big cats was closed because a tiger had gotten out and killed a man and injured two others. 

Lora and Meadow rode on a brown & white cat, with a fish in his mouth, on the historic 1921, Dentzel Carousel, which was located near the Fisher Family Children’s Zoo.

Riding the Carousel at San Francisco Zoo

Several of the exhibits were closed because it was getting too close to five o’clock when the zoo closed.

The ocean was just a few blocks from the zoo, so when we left the zoo we found a nice spot to park along the Pacific Ocean to watch the sunset. 

The clouds were now a hint of blue with streaks of yellow, orange, and red as the sun slowly disappeared into the ocean.

Watching sunset

The setting of the sun did not stop some idiot from swimming in the cold pounding ocean.

We arrived at the RMH around 6 P.M., where we ate supper, and spent the remainder of the evening enjoying talking with other families that were staying at the RMH.

I took Meadow upstairs where I put her in the shower with me, I put on our clothes and we walked downstairs to the computer room so I could upload my pictures onto a CD.

Lucy a volunteer at the RMH, said she was leaving the RMH and she would not be back until February 3.

We thanked her for all the great work she had done and we told her we would be leaving on January 25.

We all went upstairs to our room, I called hubby, I downloaded the pictures from my little camera to Lora’s computer and then we all went to bed.

Day 21: Monday, January 21, 2008 

We all get up, put on clean clothes, and walk downstairs for breakfast.

For breakfast Meadow drinks a glass of milk and she nibbles on a waffle. 

For breakfast, I ate two waffles, and mandarin oranges, and drank a bottle of water. 

We walked back upstairs to collect our dirty laundry and take it to the laundry to wash it.

I take Meadow to the family room while our clothes are washing, where Meadow watches Curious George, Barney, and Clifford the Big Red Dog. 

It was a nasty day, it rained all day, it was a good day for staying inside, and Lora slept until after 11 A.M.

Lora finally got up and got ready we rode to the Stanford Mall and ate lunch at Italian Babbo’s Ristorante, where I ordered a delicious bowl of hot soup with some fresh bread. 

We had great service, the food was great, and we had enough food leftover to take home,  Meadow even brought a plate of bread to eat. 

We walked to Victoria’s Secret, and they were having an end-of-year sale, Lora spent over$100.00 and I spent $27.00.

We rode to Target where Lora purchased her a set of luggage for $89.00. 

Then we rode around the Stanford University Campus, stopping to take pictures of students walking to and from classes carrying an umbrella to protect them from the rain.

Stanford University 

We were greeted by rows of Palm trees and a lush green lawn decorated with shrubs, and flowers, with sidewalks on either side, and drove through the entrance to the Stanford University Campus. 

We also saw a couple of statues above the horseshoe-ached, buff sandstone buildings, with red slate roofs that dot the campus.

In the main quad, we see the Memorial Church with a  Celtic cross atop a remarkable mosaic facade that portrays a moment just before the ascension of Christ.

To the left of the Memorial Church, we saw the 285-foot Hoover Tower a building dedicated to alumni and our thirty-third president Herbert Hoover.

We stopped outside the Cantor Art Museum, which is part of Stanford University, to take pictures of the sculpture garden of some of Rodin sculptures https://images.search.yahoo.com/search/images;_ylt=AwrBT.LUvJhXkTcAeaBXNyoA;_ylu=X3oDMTEyZ3Z1b2hvBGNvbG8DYmYxBHBvcwMxBHZ0aWQDVUkyQzNfMQRzZWMDc2M-?p=Rodin+Sculptures+at+Stanford&fr=aaplwwhich included the Gate of Hell.

We would have gone inside but the museum had already closed for the day.
https://www.facebook.com/CantorArtsCenter/

Gates of Hell at Cantor Art Museum 

We rode back to the Stanford Mall where Lora and I shared a meal with salsa and chips at Playa Grill.

We ordered chicken nuggets from McDonald's for Meadow.

We rode back to the RMH where Lora updated Meadows's website, while I played with Meadow.

Day 22: Tuesday, January 22, 2008 

Meadow woke us up clapping her hands. 

I got up and put Meadow in the shower with me after Lora fed her some Pedi-Sure. 

I put Meadow back into her crib and walked downstairs for breakfast.

For breakfast, I ate a bowl of soup, with bread, and a sweet roll. 

Lora and I went back to Stanford Mall to Victoria's Secret where I purchased eight pairs of panties and a pair of Victoria's sweatpants.

I walked upstairs to our room collected the dirty clothes and went to the laundry room.

While my clothes were washing, I went back to the dining room, where I talked with a woman named Helen, the great-grandmother from Montana. 

Helen said, her husband was a cowboy, and when he passed away, they had a cowboy funeral and she rode a horse in the procession.

She said, hubby suffered for five years with cancer, and after he died I moved to Witcha, Falls to live with my daughter.

Helen said that she has five grandchildren, and two great-grandsons, Henry and Gavin, whom she is here with, he has a heart condition.

She also said, that when Gavin’s father learned that he had a heart condition he ran away.

Next, I talked to a couple from Guam, Andrew, and Savannah, and their son Elisha Peter.

They said, their son Elisha had a heart condition that he was given aspirin to take. 

Elisha Peter fell hitting his head, the aspirins he was taking caused his head to clod, and now he is waiting for surgery on his head. 

He said back in Guam he knew a man whose 17-year-old son had fallen hitting his head, causing a clod, surgery was done, and he went into a coma and died.

Andrew said the doctors in Guam did not know what they were doing.

The doctors there said Elisha could not fly because it was not stable enough but Elisha’s Pediatrician told Andrew that he had gotten the family a flight to the Philippians. 

Elisha’s Pediatrician said the operation Elisha needed was minor and it would relieve the pressure.

Andrew said, I will have to go back to Guam until I can get transferred to San Francisco to work as a prison guard but in the meantime, my family is staying here and my family will never live in Guam.

I went back upstairs to finish my laundry.

I went to the computer room to write in my journal and to download the pictures from the little camera to the computer.

Mary Jo Blazek is a volunteer who is working in the computer room at RMH.

Lora and Brianna rode to McDonald's at Stanford Mall, to get some free chicken nuggets for Meadow and Kayla.

Day 23: Wednesday, January 23, 2008 

We took Meadow to her appointment with Doctor Stenberg at 11:30 A.M. but Doctor Steinberg was in surgery so we saw his nurse Teresa.

Teresa said, Meadow was doing great and she will be forwarding a copy of Meadow’s medical records to all of her doctors back home.

She said, Meadow, will have to return in six months for a check-up, which will be sometime in July 2008.

Teresa said, that we should start seeing a difference in Meadow, in the next six months. 

We left the doctor's office and rode to Santa Clara, we stopped at Mexicali Grill a Tex-Mex restaurant located in the Mercado Mall to eat lunch, where we each ordered a soft taco with a salad.

Lora drove us to the Yahoo building located at 701 First Avenue Sunnyvale, California, and walked inside and asked if we could tour the building but they were not giving tours.

Yahoo had just laid off 700 employees. 

We rode to the PHP, Parents Helping Parents located at Sobrato Center for Nonprofits -San Jose 1400 Parkmoor Avenue, Suite 100 San Jose, Ca. where we were given a grand tour of the facility.

. 

Our next stop was the Winchester House and Museum in San Jose, where we did the garden walkthrough because the house was not wheelchair accessible. 
https://images.search.yahoo.com/search/images;_ylt=A0LEVzwVvZhXUfEAzmpXNyoA;_ylu=X3oDMTEyZ3Z1b2hvBGNvbG8DYmYxBHBvcwMxBHZ0aWQDVUkyQzNfMQRzZWMDc2M-?p=Winchester+House+and+Museum&fr=aaplw

We saw the Egret, & the serpent fountains, we saw the garage, the car wash, and an Indian statue

wearing a cloak, a headdress, and a longbow in his left hand.

We saw two orange trees full of ripe oranges, an English Yew tree near the garage, and many other trees & shrubs in various sizes and shapes throughout the property. 

There were roses, lilies, and many other flowers throughout the gardens.

The house took on an eerie look as the sun went behind the clouds and darkness fell on the house and grounds. 

Winchester House as night is falling.

We could still see the purple roof, blue lights were beaming from the top floor, and a yellow front porch light lit the way for guests. 

Yellow and white lights beamed from several of the lower level rooms while total darkness came from many of the other rooms, and shadows danced on the ground as we stopped to take pictures. 

The Winchester House was a beauty by day and a sinister, eerie, creepy place to be after dark.

We walked back to the Museum where Lora purchased a rainbow sucker for Meadow.

Meadow had a sticky all over her face.  

In the museum, we saw Zelda’s Fortune Cabinet inside was a gypsy, with her fortune cards and her crystal ball.

The lower half of Zelda’s Fortune cabinet was a coin slot, and right below the coin slot was the face of the devil, he had green eyes, a red mouth, and a black beard, his face was golden, and on his head were black horns and the image of a fork on his forehead.

If you insert seventy-five cents she will tell you the future but forget playing poker with her.

We also saw a player piano built by Link Piano Company, Binghamton, NY.

We rode back to the RMH for supper, they had prepared beef stew, potato soup, bread, and a large salad. 

After supper, many of the families sat around talking.

The family we met from Montana had moved to a hotel and they will be going home on Friday.

We will also be leaving on Friday.

The twins that were conjoined are leaving tomorrow.

Brianna Cain is very upset about her daughter,  she and Lora are talking.

I am talking to Vanessa Preston about her son Brandon, who has a heart condition, and he still in the hospital. 

I walked upstairs to finish my laundry and write in my journal it is now 12:30 P.M.

Meadow and Lora have been asleep for a while.

Day 24: Thursday, January 24, 2008 

After I dressed Meadow and was ready we went to the dining area for breakfast.

I fed Meadow a can of Pedi-sure and I ate a waffle. 

In the dining area, I talked to the parents and grandparents of Robert, a family from Louisiana, and Vanessa Person. 

Lora came downstairs where she ate breakfast and joined in talking.

We spent the morning taking pictures of our friends.

The news media came by to take pictures of the conjoined twins Yurelia and Fiorella Rocha-Arias, who had been successfully separated.

Meadow was given a Winnie Pooh by Matthew’s family. 

Doctor Steinberg had also performed moya surgery on Matthew.

We finished our packing and went to Meadows's appointment at 2:30 P.M. with her therapist Wan Chen Kang.

While we were at the hospital we went to visit Brandon Person who was in PICU and his mom Vanessa was there with him.

Lora and I split a BLT, a taco, and a slice of Carrot Cake for lunch in the Lucile Packard Children’s Hospital Cafeteria.

We went back to the Cantor Art Museum at Stanford University and Vanessa Person went with us.

At the museum, we saw pictures, pottery, statues, a mummy, an American Indian dancer in full dress, totem poles, and headdresses from many different countries, Africa, India, China, and North and South America. 

We have a beautiful wall hanging of the California Mountains, Yosemite Mountains, gorges, cowboys, and several portraits of the Stanford family. 

We saw many pieces from Leland, and Jane Stanford’s, jewelry collection. 

We saw many pieces of collections from the ancient Mediterranean era, collections from Europe, and American 1500-1900 collections of modern and contemporary. 

We saw many pieces of art from Asia, Africa, Oceania, Native America, and ancient America. 

We saw Rodin’s collection of bronzes, the largest in the world outside of Paris. Twenty bronzes include the “Gates of Hell” It took Rodin twenty years to complete the others, the Thinker, the Kiss, the Age of Bronze, and many others. 

We saw pieces of jade from the Orient. We saw a piece where a monkey was riding a horse with his manly parts exposed.

Cantor Art Museum monkey riding horse

We saw many African pieces, headdresses, statues, and pottery, and many of these pieces were made out of some sort of wood. 

The oriental pieces were made out of stones like jade.

We were allowed to take pictures downstairs. 

The museum was wheelchair accessible, the elevator was quaint, and it was like a dumb waiter very small. 

Lora, Vanessa, and Meadow left using the wheelchair at the exit and I used the front door. 

We took Vanessa back to the hospital, she is nursing her son, so she needs to pump him some milk.

We returned to the RMH where we ate some snacks and visited with some of our friends.

When Vanessa returned to the RMH, she rode to Target with us where I bought some cookies, 

Vanessa spent $70.00 on clothes for Brandon.

We returned to RMH where we cleaned our room, finished washing our clothes, and started packing and Lora went to get a cart for tomorrow, to put our luggage on, so we could carry everything down at once. 

Day 25: Friday, January 25, 2008

It was hot in our room last night so I turned on the air conditioner.  Lora and I both woke up coughing because we had got too hot.

Lora and I were up at 4:30 A.M. We both took a shower, ate breakfast, and drove to the San Francisco California airport. 

Lora traveled down Highway 101, the traffic was heavy, and it was raining and foggy.  

When we arrived at the airport, we had to return the rental car, Lora dropped Meadow and me off at the ticket counter. 

We both had to use the restroom, before going through security.

We checked our luggage in got our tickets and walked through security without any problems.

We were told that our 10:45 A.M. flight would be delayed until 1:00 P.M but we could take an earlier flight it would be leaving at 8:30 A.M.

We are flying with Frontier Airline, our plane has an otter on the wings and tail. 

The flight to San Francisco had a sea lion named Sherman. 

The frontier hub is in Denver, Colorado and its logo is animals.

We sat in the front of the plane in seats, A, B, and C,  I sat next to the window, Meadow was in the middle seat and Lora was in the aisle seat. 

Lora changes Meadow’s diaper once we are in the air after that Meadow and Lora fall asleep.

I am writing in my journal about our many adventures and trying to listen to “Deathly Hollows” on my Pod. 

My sinus was draining so I could not sleep.

We flew from San Francisco to Denver, Colorado in two hours, after we landed we ate a nice in the airport at Jimmy’s Beefstrof.

Lora and I split a steak sandwich, a salad, and some fries, and we each ordered tea. 

We saw two flight attendants from our airplane ordering at Jimmy’s Beefstrof and they said that the food was good and it was!

After we finished eating we went to our waiting area, where I noticed a man wandering around as if he was lost. 

He fell to the ground hitting his head, he was having a grandma seizure, and no one knew what to do.  

The ticket collectors called for help and the man was taken away on a stretcher. 

In the lobby Lora, Meadow, and I were sitting next to a serviceman who was born and raised in  Wyoming, he was traveling to Lexington, KY, and he said he had two children ages one and four. We started talking about Meadow’s surgeries performed by Doctor Steinberg and our stay at the RMH. 

He told us he was born with a cleft or club foot and that he was fortunate enough to get it fixed at a young age with the help of the shiners in Wyoming. 

His flight was boarding the about the same time as ours so we said goodbye.

I called hubby and said we were leaving Colorado, he said Frontier Airline had sent him an email saying our flight had been delayed. 

I told him we had taken an early flight. 

We were the first to board, Lora had taken Meadow out of her wheelchair and was carrying her and I was left behind to push the overloaded wheelchair.

As I started through the shoot the overloaded wheelchair turned over spilling luggage everywhere.  

The door to the shoot was closed, Lora handed me, Meadow, as she and the woman at the counter began to gather up our belongings and load them onto the plane.

We were safely seated in the middle of the plane in row 15 seats  A, B, and C and everyone else loaded onto the plane.

During our flight were served a drink and pretzels.

We laughed at Meadow when she spits out the pretzel she has been sucking on, and it splashes down nearly hitting Lora’s coke that she was drinking.

When we arrived in Nashville at 6:25 P.M. the pilot came over the intercom and said, we had a smooth fight, and everyone clapped.

Hubby was waiting for me and so was Lora’s husband. We still had a two-hour ride home.

On the ride home I ate Milk Chocolate Hershey Bar and drank a can of Mountain Dew. 

We stopped at Chick-fil-A in Athens where we ordered a chicken sandwich and some waffle fries.  

Lora said that her family was going to Nashville to eat at Rainforest Café at the Opry Mills Mall. 

We are HOME!

Summary:

We had many adventures in January the scary port-a-potty along the cliffs above the Pacific Ocean.

A  man having grandma seizures in the Denver airport on our flight home.

Meadow’s two major surgeries, three MRIs, a SPEC Scan,  an Angiogram, and many ohewees. 

Our trips to the Golden Gate Bridge, Muir Woods, Pier 39, to San Francisco Zoo, walking the grounds of the Winchester House, The Stanford University and Cantor Art Museum, Stanford Mall, to Santa Cruz Boardwalk and Happy Hallow Zoo and Park. 

The weather was good, which helped give us a safe flight home, the temperature in Denver, CO was in the mid-50s, and all the snow near and around the airport was gone, except for a patch here and there.

Meadow is on her way to healing from her surgeries, her hair is beginning to back, and she is full of energy,  playful, and a happy little girl.

Doctor Steinberg’s nurse said, that we should start seeing results from Meadows in the next six months as the grafts fuse into the surgery areas.

I am thankful everything went well with all the tests, and surgery, and how well Meadow is recovering.

We met many families that were staying at the RMH in Palo Alto, I hope their children get to go home and our prayers are with each and every family that we met at the RMH.

In February, I will be going to Disney World with a group of Varsity Cheerleaders from Rogers High School. This will be a totally different adventure than the one I just went through with my granddaughter Meadow.

Meadow' second surgery at Lucile Packard Childrens Hospital in Stanford

January 14-18, 2008

Day 14: Monday 14, January 2008 

I slept until 9:00 A.M. got up, gave Meadow a can of Pedi-sure, and put her back in the bed with Lora.

I took a shower and went downstairs for breakfast. 

When I returned, Lora was getting ready, we walked back downstairs, where Meadow drank two glasses of juice.

We spent most of the day at RMH. We walked across the street to the Stanford Mall where Lora bought Meadow some anti-bacterial soap and body oil.

I bought a nail buffer.

We stopped at Victoria's Secret and Teuscher Chocolates of Switzerland where we purchased some chocolate candy and we bought some cheese and nuts at the local fruit market.  

Stanford Mall Palo Alto, Ca

Stanford Mall Palo Alto, Ca

We walked back to the RMH where supper was prepared, we had chicken burritos, salad, beans, and rice. 

Lora continues working on Meadows's scrapbook. 

I pushed Meadow upstairs in her wheelchair to our room where I took pictures and videos of her before her surgery.

I put Meadow in the shower with me, I had to sit down to give Meadow a bath, and I sat on top of the shower drain which caused the water to overflow into the bathroom floor. 

I put our pajamas on, and then I put Meadow to bed. I dried the water on the bathroom floor.

When Lora returned, she gave Meadow her medicine. I fed Meadow a can of Pedi-Sure, and then everyone went to bed it was around 10:00 P.M.

Day 15: Tuesday, 15, January 2008 

We were up at 4:00AM getting ready for Meadow's second surgery.
Meadow has an EDAS on the left side of her head which, is a bypass of the left internal carotid artery.

We prepare for a stay at the hospital by packing our bags.
We load the car and drive to the hospital.
Meadow is admitted to the hospital and we are taken to the second floor for surgery. 

The night before Meadow could only have clear liquids until 4:30 A.M. 

Meadow was taken back for pre-op around 6:20 A.M. 

Lora and I both talked to doctor Kevin Chas in Neurosurgery and Kirsten, one of the RNs.

Meadows's team of anesthesia Nisha, Larkin, and one more don't recall his name, said we would be taking care of Meadow. 

We could not go back to Meadow so while we waited in the second-floor lobby we ate a snack of crackers, cheese, nuts, and doughnuts.
We also made a few calls back home to inform family members of Meadows's condition. 
I talked to Charity and Lora talked to Josie her mother-in-law. 

While waiting in the lobby, during Meadow's surgery we met an oriental woman whose daughter was in PICU with Meadow.
Her English is choppy, and her little girl is going home today.

I could not sit still so I walked up and down the stairs.

Doctor Steinberg came out of surgery around 1:00 P.M.
He came over to talk to us, he said Meadow came through the surgery without any compilations during her indirect bypass on the left side of her brain. 

That there was negative blood flow to the brain before the surgery and the surgery should correct the blood flow.
We thanked the doctor and walked to the cafeteria for lunch.
We ordered burritos, pudding with granola, with coke & tea.
When we finished we went back to the waiting area on the second floor. 

In the waiting area, we met a woman whose daughter was in IPKU and a man from Arizona whose grandson was in PICU. 
We were finally allowed to see Meadow in the PICU. 

The nurse taking care of Meadow was Katherine and her Endocrine doctors were Wilson and Diane. 

Lora stayed in PICU with Meadow, I went to the lobby where I worked on my computer.

There was a large family of Spanish-speaking people in the lobby, they left at about 10 P.M. One of the young girls was staying at the RMH, and we talked.

Her husband brought me a pillow to lay my head on, and I thanked him. 

Later, the young girl said that she was going to her uncle's to watch a movie.

When the young girl’s grandmother came into the lobby she said that her granddaughter was not coming back but I already knew. I thank her. 

I was almost asleep when it was around 11PM, Lora said we could sleep in the Serenity Room on the third floor. 
We slept on a couch that let out into a bed. 

Day 16: Wednesday 16, January 2008 

I was up at 8 A.M., changed my clothes, washed my face, brushed my teeth, wet my head, and put makeup on my face. 

Lora gets up puts on her makeup and we both go to the second floor to check on Meadow. 

Meadow is still in PICU and they have not taken her down for her MRI, so both Lora and I go to the cafeteria for breakfast where we eat French toast, bacon, and cheese, I drink Mountain Dew, and Lora drinks tea. 

We walked back upstairs to Meadow’s room where she was resting. 

Meadow’s nurse is Jan and Lora is talking to her about Meadow’s & Madison’s eyeglasses. 

Katherine was Meadows's nurse yesterday until 7:30 P.M. and she came back today at 7:30 A.M.  Katherine is a traveling nurse from Jacksonville, MS. 

She now lives in San Francisco in an apartment with her husband. 

She said that she has applied for a full-time position at Lucile Packard Children’s Hospital. Her husband does the maintenance work at the apartments where they live. He had his own business back in Mississippi but it was too hard trying to travel back and forth so he sold his business and moved to San Francisco.

We saw Caleb’s mom on the third floor, they have been here for five weeks, and they are hoping to go home soon. 

A group of medical students came through and they were talking about each patient they had seen.  

Meadow was getting her milk in her G-tube after her MRI. 

I went to the lobby to work on my journal, and to post news of Meadow’s condition on her CaringBridge website. 

I stayed in the lobby for about two or three hours, Lora came out around 12:30 P.M. and she said Meadow would have to wait another night in the PICU. 

Lora was upset because they had not come to get Meadow for her MRI. 

When I went back to Meadow’s room she let me kiss her hand, but she would not let me wipe her mouth.  

Meadow was watching Baby Einstein on TV,  the nurse was talking to her, trying to calm her down, and finally, she let the nurse wipe her mouth. 

There was some construction going on in the building, and the drilling and hammering were bothering Meadow.

Meadow was to have her MRI at 5 P.M. and they did not come for her until 7 P.M. Lora was getting restless because she was worried that Meadow was not getting fed. 

At 9:20 P.M. Meadow was given a cup of  Pedi-Light. 

One of the IVs’ was taken out of Meadows' arm, while Lora was holding her down.

Meadow is given all her nightly meds, Lora is reading her Harry Potter book, and Meadow is watching the baby channel on TV. 

The nurse starts the Pedi-Sure drip into Meadow’s G-tube at 10 and up to 40 per minute. 

Meadow was a little restless during the night.

Some of the families that we met while we were in Palo Alto.

Callie and her mom Sarah are from Jacksonville, Fl

Caleb has a heart problem and she goes home on January 16.

Caleb has a website called “babiesospecial.com” They are from Lower California in the area of Eric Brockovich Story.

Andrew and Savannah are Elisha Peter's parents.

They are planning to move from Guam to San Francisco. 

Andrew will have to go back to Guam for three months to work and be transferred to San Francisco to work as a guard for the prison.

Brandon and his mother, Vanessa Pearson, they came to the RMH from Japan. 

Vanessa’s 2-year-old daughter and husband are still in Japan and they are hoping to come to California soon.

Vanessa Pearson and her son

We met Rachael, her sister Kayla, and her mom Brianna Hall who is expecting a baby anytime. 

Rachael is going through her third surgery on her heart and her dad had to go back home to work. 

Lora, Brianna & Kayla Hall

We met a family from Louisiana, Layla a four-month-old, her mother Kelly, and Kelly’s mother.

They are hoping to go home soon. 

Layla will be flowed back to Louisiana and will have to stay in the hospital there. 

Kelly is only 17 years and she has younger siblings back home.

A family from Arizona the boys' names are Robert (in need of heart) Jesus and their parents and grandparents. (Jesus later died)

The family from Arizona (second heart failed)

Family from Montana, Gavin, age 2, Henry age 6 months, parents, and great-grandmother Helen. They left a few days before we did.

Another family from Alaska has been here for 2 years, she has three children.

Her husband works in Alaska and the girls go to school in Palo Alto but do go home for visits. 

I met a woman whose son was waiting on a liver transplant, and I spoke to her several times but not much because most of the time she was at the hospital. 

The conjoined twins and their sister from Costa Rica were staying here they could not speak English.  

They were separated in November of 2007 and were leaving the same day as we were.  

The twins' names are Fiorella and Yurelia Rocha Arias.

Meadow and her friend Fiorella or Yurelia a conjoined twin

Day 17: Thursday, January 17, 2008 

Lora and I spent the night on the third floor in the Serenity Room, the Serenity Room has two restrooms, one shower, two couches that let out into beds, and two chairs that make into beds. 

The Children’s Hospital is under construction and there is no restroom for public use on the second floor near the children’s PICU. 

I took a shower last night and washed my hair at the RMH. I put my makeup on, combed my hair, and put my clothes on. 

Lora took a shower, fixed her hair, and dressed. 

We put the bed away, folded the bedding, and packed away all our belongings then we went downstairs. 

Meadow was awake and she was a little fussy. 

Meadow’s nurse Theresa had removed the central line in Meadows's right side.

Meadow is now resting safely in her mother’s arms.

Second Moya Moya surgery

I went to the lobby where I ate some peanut butter and crackers, cheese, and a Kashia bar.

I walked back to the PICU where Meadow was resting, and then they sent Meadow to room 3517 South. 

Little Jordan Hall age 5 is sharing a room with Meadow, Jordan had an MRI and it showed that she has a tumor in her head and she will have surgery next week. 

She will be going home for a few days before the surgery and the nurse came in to take her blood which frightened her.

Melanie is Meadow’s nurse for today.

Meadow drank a can of Pedi-sure. 

Lora said we would have stayed another night and I slept in the parent's lounge and Lora stayed in the room with Meadow.

Lora said that both of Jordan’s parents slept in the room and they talked in a whisper all night.

Jordan was up at dawn so she could eat breakfast with her dad, at home Jordan was up every morning at 5 A.M. and then she went back to bed with her mother.

Day 18: Friday, January 18, 2008   

Meadow was awake when I came into her room so I gave Meadow some Pedi-Sure.

I walked downstairs to the cafeteria where I bought some French toast and a bottle of tea for breakfast.

I took Lora up an order of French toast, the tea that I had brought back was the wrong kind of tea, so Lora took the tea back to the cafeteria to swap for chocolate milk.

Doctor Kevin Chaos removed Meadows's bandage while I was gone to the cafeteria.

He said that Meadow could be released, so we packed up everything but we did not leave the hospital right away because Meadow has an appointment with Wan Chen, MA.

At 11 A.M. Lora goes back to sleep sitting on the sofa holding Meadow in her arms, while I am watching a movie on the TV.

Jill from Dr. Steinberg’s office came into our room with Sandy. 

Sandy is a Moyamoya survivor and is back for her six-month checkup and wants to meet Meadow.

Wan Chen, MA a therapist comes by at 1 P.M. to get Meadow, she takes us to her office on the third floor, where she makes a hand splint for Meadow.

Meadow's therapist Wan Chen

When Chen finishes with the splint, we return to Meadow’s room, collect all our belongings, and leave the hospital. 

Lora drives back to the RMH, where I wash our clothes and take a shower. 

I take Meadow to the dining room with me, where I eat a salad from McDonald's and 

Meadow drinks two cups of apple juice and eats several chicken nuggets. 

Meadow and I walk back to the laundry room to finish our laundry.

When we get back to the room Meadow has a dirty diaper, so I remove the diaper.

I put Meadow into the shower with me, and while washing Meadow's head I find another staple.

I put pajamas on both Meadow and myself and we went looking for Lora, she had fallen asleep in the family room.

I woke Lora up and told them about finding the staple in Meadow’s hair.

We all went back to our room where Lora gave Meadow all her meds.

Lora goes downstairs to eat supper, where she talks to other family members, that is still up in the dining area.

Meadow and I went to bed.