2002 Jun 28, Children's Museum of the Shoals Florence, Alabama

Took Hannah to the Children's Museum where she sat in the dentist's chair holding a blue toothbrush as long as her arm would not fit in her mouth. Of course, the teeth she is standing next to would be used by the large blue toothbrush.

Naturally, if you are in the Shoals area you have to visit the birth home of Helen Keller. Of course, hanging next to Helen Keller on the wall are Jessie Price and Stanley Goldstein. Now for a little sitting time in a nook for storytime. Back to the first floor, it is time for a little music, as Hannah enjoys dancing on the musical keyboard with keys that are bigger than her feet. There were also drums, xylophones, and many other musical instruments.

Onto the kitchen where a raccoon was watching as she prepared a meal. After she finished cooking it was time for a quick slide with Miss Piggy. Time for a little construction work with a hammer & nails, Hannah don't forget to put on your construction hard hat. Now it was time to check out the water pump and the flowing creek that was filled with boats floating down the stream.

It was such a beautiful day so we headed outside. Hannah crossed the rocks that were over the babbling brook, making sure she did not get her feet wet. Lying on the ground were construction materials to build a house, she started but did not finish. There was a Green wagon so she climbed aboard for a picture. We walked back inside did a little grocery shopping and once again did a little cooking. Back upstairs for a little karaoke. Hannah dressed up in a white robe with purple trim and sash. Of course, I joined in the karaoke we had fun acting silly.

Next, we visited the X-ray machine to see what she looked like inside. Next, she did a little crafting and tracing the USA map. We had a fun day at the Children's Museum of the Shoals.

2009 March 9-12 Meadow Sick

Monday, March 9, 2009

Meadow has been sick since Monday morning (5:30AM). She has been vomiting & had a fever. Since she is "Cortisol deficient,” this can be a real issue. She had an emergency shot of Solu-Cortef on Monday. We had to alternate Tylenol suppositories & Motrin to get the temp down. She was prescribed Phenergan suppositories for the vomiting. The Phenergan made her very sleepy. She slept most of Monday.

Tuesday, March 10, 2009 

Tuesday morning (2:30AM), Meadow woke up continuing to vomit. She heaved so much that she broke blood vessels in her face and had tiny red dots all over her face, neck, and even her ear lobes. We paged the nurse at her doctor’s office and her endocrine doctor. They suggested we take her to the Children's Hospital. We also had to give her another shot of Solu-Cortef before we left.

I rode with Lora to take her to Children's Hospital in Birmingham we arrived at the ER at 7AM. Meadow had a series of lab work a CT scan, chest & stomach x-rays. She got an IV and they started fluids immediately. She also had to have IV seizure medicine because of the continual seizures she was having. 

She had a seizure on the way to the hospital & in the lobby. They took her straight back. Then she had two more on the stretcher. Then they rushed her to a room with more equipment to monitor her. She had not held down any seizure medicine since Sunday night. Also, her blood pressure kept dropping to 80/30, so she had to have another dose of Solu-Cortef IV. She had to have her blood sugar  & blood pressure checked frequently.

She was admitted to the Special Care Unit once she was released from ER. 

Wednesday, March 11, 2009

We walked over to the RMH to see if we could get a room for the night.

The first night we spent sleeping in chairs in the fourth-floor lobby.

At the RMH house, we had our own room where we could shower and rest. There was always a hot meal at dinnertime. There was usually snack, cereal in the pantry. So we would eat what we could find. 

You could also bring your own food and were given a bend with a number to use for your food that was put in the refrigerator.

Once the IV fluids kicked in Meadow started having a wet diaper.

She actually felt like sitting up in bed.

Meadow in Special Care

Meadow in Special Care

She sat up & played with a musical toy. I hoped that once she starts holding some fluids &/or food on her tummy she will start feeling better. 

Her little eyes look dark around them and glossy.

Meadow in Special Care

Meadow in Special Care

Meadow in Special Care

 Childrens Hospital 

Childrens Hospital

Demolition

Demolition

Thursday, March 12,2009

We ate a salad, barbecue sandwich, and brownie at the RMH for lunch. We walked back to Children's Hospital and Meadow was doing so much better that she was released at 2:30PM.

Ronald McDonald House

Children's Hospital 

We were home by 5:30PM.